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Elder Friendly Initiative

BILL OF RIGHTS FOR HOSPITALIZED OLDER ADULTS (draft)

For the past 5 years, the Hartford Institute for Geriatric Nursing (Hartford Institute) has been developing a Bill of Rights for Hospitalized Older Adults.  The draft Bill of Rights shown below is a result of extensive revisions and testing with older adults recently discharged from the hospital, and the language is at a 6th grade level.

 

I have the right to expect that… Expectation/Activity
1. Staff know how to care for older adults
  • New staff learn about care of older adults
  • There are nurses, doctors, and/or social workers who are specialists in the care of older adults
 
2. I will be treated as someone with my own care needs and feelings about my care.  
  • Staff name tags have their name and what they do (e.g. staff nurse; doctor) in large print
  • Staff tell me and write down the name of my doctor(s), my nurse and my social-worker
  • Staff ask me about my goals and plans when I leave the hospital
 
3. My care will be based on my own habits and needs, and how I plan to manage when I leave the hospital. Staff ask me:
  • Where I live and how I care for myself, cook, shop, take medicines, etc.
  • If I have or need someone to help me when I go home
  • If caring for me at home is a strain on my family
  • If I have a problem with my memory or how I understand things
  • If staff need to remind me about things like going to the bathroom
4. Staff will tell me in a  timely way about my care.  
  • I or my family can learn about care of older people in writing and on the hospital television (website)
  • Staff will tell me, in advance, what to expect about tests and/or surgery
  • Staff will give me paper and pencil so that I can write down what they tell me, and questions I have about my care
5. Staff will listen to and answer my questions truthfully to the extent I want and in ways I can understand.
  • Staff will ask and tell me about my care and answer my questions when I am:
  • sitting and comfortable
  • not in pain, hungry or sleepy
  • have my glasses and my hearing aide
  • Staff will help me and give me time to ask questions about my care
  • Staff will help me to write things down that I want to remember
  • If I am nervous, afraid, and unsure about my care, staff will help me with these feelings, and may give me medicines
  • To make sure I understand, staff will ask me to say back in my own words what they have told me
  • If I do not understand what staff tell me, staff will ask a  geriatric specialist (doctor, nurse or social worker) to speak with me
6. If I am able, only I will decide about my care. I can choose a family member or someone I trust to decide with me, or I can choose a family member or someone I trust to decide for me
  • Staff will expect me to make my own choices about my care unless I tell them to ask someone else
  • Staff will talk to me and/or the person I chose in a way that respects my wishes
  • If I am able, only I will decide about tests, surgery, to sign a consent, and/or to be in a research study
  • If I have a health care proxy or living will, staff will ask me for a copy and put it in my chart
  • My care will be guided by my health care proxy or living will if I am not able to decide for myself
  • If I refuse a treatment, staff will not take it as a sign that I am not able to decide about my care (e.g., that I am incompetent)
  • Staff will make sure that my proxy knows about my care and about decisions they need to make
 
7. I will not be in pain
  • Staff will ask me if I have pain
  • If I cannot answer, staff will use other ways to see if I am in pain
  • Staff will keep me pain free, or in as little pain as possible
  • Staff will ask me if I want to see a clergy or spiritual counselor
8. Staff will keep me safe and will not tie me down (restraint-free)
  • Staff will know how to keep me safe and not tie me down
  • Staff will not give me medicines instead of  tying me down
  • If staff must tie me down for my safety, they will use ties safely and keep them on for as short a time as possible.
9. Staff will prevent and/or spot early signs of problems that can set-back my care
  • Staff will know how to prevent and/or spot early signs of problems that can set-back my care such as:
  • Confusion
  • Bed sores
  • Urinary incontinence
  • Constipation
  • Loss of weight
10. I will get back to my strength and my usual state of mind as quickly as possible.
  • Staff will help me keep and get back my strength and my normal mental state.  To do this, staff will help me keep and get back my:
  • Appetite
  • Strength to walk, even with help
  • Bowel and bladder function
  • Sleep
  • Usual mood and sense of well-being
  • Sharpness of mind
  • I can get general advice on how to keep and get back my strength and normal state of mind in writing and on the television in my room
  • If I need or want, geriatric specialits will be asked to help me keep and get back my strength and my usual state of mind
 
11. Family, or those I choose, can stay with me
  • My family can be with me in the emergency room, in tests, and in critical care
  • My family can learn how to help with an older adults care in writing and on the hospital television (website)
  • If they ask, my family can learn how to help me eat, bathe, and do other care
 
12. I, or those I choose, will have enough time to make plans for my care when I leave the hospital.
  • Staff will talk to me and those I choose ahead of time about the care I will need when I leave, and where to get that care
  • My family can learn about care of older adults when they leave the hospital in writing and on the hospital television (website)
  • I, or those I choose, will decide ahead of time about where I will get my care when I leave (go home, to rehabilitation, a nursing home, or assisted living)
 
13. In enough time before I leave the hospital, I (or those I choose), and my doctor and other caregivers will get my plan of care in writing
  • If I am 75 years old or older and going home, staff will arrange for me to get home care 
  • 48 hours before I leave, staff will give me and/or my family or proxy in writing, and send  to my doctor, home care agency, rehabilitation facility, nursing home or assisted living facility, my plan of care:
  • what I can eat
  • my medicines (new and changed)
  • my treatments
  • what I can and cannot do (e.g., walk, bath)
  • when I see the doctor next
  • a contact person at the hospital

 

Revised 08 12 09; email: mathy.mezey@nyu.edu

Hartford Institute for
Geriatric Nursing

New York University
College of Nursing
726 Broadway
10th Floor
New York, NY 10003
Phone: 212.998.5355
hartford.ign@nyu.edu